April is National Parkinson’s Awareness Month!
April is National Parkinson’s Awareness month and Pemi-Baker Hospice & Home Health would like to shine the light on how a palliative care team can help those living with Parkinson’s Disease.
Understanding Parkinson’s Disease
Parkinson’s disease is a progressive illness of the central nervous system that affects muscles and movement. It develops gradually, sometimes starting with a barely noticeable tremor in one hand. While hand tremors are the best-known sign of Parkinson’s disease, the disorder also causes muscle stiffness, slowing and jerking.
Parkinson’s disease is one of the most common disorders of the nervous system. It damages the system of nerves that the brain uses to tell the body’s muscles what to do. Brain activity is also affected by the loss of dopamine, an important chemical messenger that helps the neurons in the brain do their work.
Parkinson’s disease symptoms get worse as the condition progresses over time. Although the disease cannot be cured, medications can improve the symptoms. So can palliative care.
Understanding Palliative Care
Palliative (pronounced “pal-lee-uh-tiv”) care is specialized medical care for people with serious illness. It focuses on providing you with relief from the symptoms, pain and stress of a serious illness like Parkinson’s disease. The goal is to improve quality of life for both you and your family.
Palliative care is provided by a team of doctors, nurses, social workers and other specialists who work alongside your other doctors to provide an extra layer of support. It is appropriate at any age and at any stage of your illness. You can have it together with curative treatment.
Your palliative care team will help you to match your treatment choices to your personal needs and goals. That will allow you to have more control over your life. In all ways, the palliative care team helps you to better cope with the challenges of living with Parkinson’s disease.
Treating the Symptoms of Parkinson’s Disease–How Palliative Care Can Help
While there is no cure for Parkinson’s disease, there are a growing number of treatments that can provide you with relief from its symptoms. People with Parkinson’s disease are often prescribed a combination of levodopa and carbidopa, which helps replenish the brain’s shrinking supply of dopamine.
A new therapy uses electrodes surgically implanted inside the brain, and a small electrical device called a pulse generator to provide electrical deep brain stimulation (DBS). Parkinson’s patients also benefit from the expertise of physical, occupational and speech therapists to help them manage practical issues in their daily lives.
Other symptoms of Parkinson’s disease include a variety of motion-related issues, as well as sleep disturbances, fatigue (feeling weak or tired), constipation and other gastrointestinal problems, and low blood pressure.
Decisions about nutrition and feeding tubes eventually may become an issue, but the palliative care team will be able to provide guidance on this difficult subject. The social worker on your palliative care team can work closely with you to help you cope with the changes in your health. Sometimes just talking with an expert about what’s happening can be a great relief.
Another whole area of Parkinson’s symptoms is called cognitive decline, whereby ravages of the disease affect thinking and other uses of the brain. These include troubling mood disorders like depression and anxiety, unclear thinking, difficulty concentrating on a task and the potential emergence of dementia.
Some people become more disabled and dependent over time despite the best treatments. They may come to need so much help with the routine tasks of living that they require 24-hour care. This care may be provided at home or in a setting like assisted living, where they get the personal care they need.
Your palliative care team will talk with you about your hopes and preferences, and what may be possible for you to get the support you need to continue living life to the fullest. Because of the long course of Parkinson’s disease, the palliative care team can help you to clarify your goals and set up treatment plans far in advance. There are personal decisions you can make about how to live the life that remains, no matter what direction the disease takes-(Advance Care Planning).
Your palliative care team can help you with all this and more. The team will be your sounding board and your first line of defense against any symptoms of pain, discomfort, depression or anxiety.
The team specialists will help you and your loved ones to make both large and small decisions. They will enhance communication between you, your family and your other doctors, and help you to clarify your goals for care.
How to Get Palliative Care
If you or a loved one is facing Parkinson’s disease, ask your doctor about the benefits of a palliative care team or call Pemi-Baker Hospice & Home Health for a FREE consultation to help you make sense of the situation. PBH&HH also offers free Advance Directive help, helping you fill out your forms via Zoom. We hope you call or email us today for more information.
With over 55 years of experience, serving clients from 29 towns in central and northern New Hampshire, Pemi-Baker Hospice & Home Health is committed to creating healthier communities. Services include at-home healthcare (VNA), hospice and palliative care, and Community Programs including: American Red Cross CPR/AED/FA, Caregiver Support Groups and Grief and Loss Support Groups. Providing compassionate care with experienced staff who are trained, certified professionals in the business because of their hearts. In your time of need, we’re right where you need us.
Pemi-Baker is located at 101 Boulder Point Drive, Suite 3, Plymouth, NH. To contact us please call: 603-536-2232 or email: info@pbhha.org Like our Facebook Page: @pemibakerhospicehomehealth


March is National Social Worker month and Pemi-Baker Hospice & Home Health wants to celebrate their social workers- Shannon Cassidy, BSW and Lauren Bell, BSW by explaining the details of Palliative and Hospice social work. The mission of hospice and palliative care social workers is to help clients and their families manage difficult situations and illnesses with dignity and peace of mind.
What Does a Hospice or Palliative Care Social Worker Do?


Caregivers provide help with daily essentials along with the physical and emotional support needed by our loved ones late in life. But do we ever stop to take care of the caregiver? How often do we say “thank you” for being there for our loved ones, our clients, and the most defenseless in society? When do we take the time to ask how the caregiver is doing? Care-giving can be a gratifying experience but can also cause a great deal of stress. While caring for and focusing on another, a caregiver can neglect their own health, causing harm over time. Therefore, it is essential to provide tools and resources to help manage stress. If a caregiver doesn’t care for themselves, they can’t care for someone else.
Make sure you take time on February 18th to honor the people who care for our most vulnerable population. For example, you could give cards with encouraging words of appreciation or a small gift to show gratitude. You can also honor caregivers on social media using the hashtag #nationalcaregiversday and let people know what makes them special. Here are some suggestions for a small gift to the caregivers in your life:
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Adults, young adults, and in some cases mature teens from all backgrounds, experiences, and cultures. Effective hospice volunteers embrace the fact that their role is one of compassionate service.
Contact Shannon Cassidy, Pemi-Baker Hospice & Home Health’s Hospice Volunteer Coordinator at 603-536-2232 or email her at 


Another benefit that at-home therapy provides, is the opportunity to assess the safety and accessibility of the home environment. A therapist’s trained eyes can spot fall hazards or bathroom dangers and provide helpful preventive advice.
The existence of hospice makes this level of freedom available to many who otherwise would not have had it. Hospice care offers 24/7 clinical support, medication and pain management, assistance with daily living activities, medical supplies and equipment, volunteer support and companionship, social, spiritual and grief support from social workers and chaplains, for the whole family.
The elderly who wish to retain the freedom of staying in their home and ending their lives on their own terms experience true psychological benefits. Their comfortable surroundings allow them to end their lives with a sense of dignity, which is incredibly valuable. In fact, home care harkens back to older days, when tending to the terminally ill at home was the standard. There’s always the added benefit of being closer to their loved ones in their final days.







